Jun 19, 2021
It’s Father’s Day this weekend and I have a warning: I’m not going to be buying you a greeting card. I’m learning that my own words are important to you. I want my words to speak loudly to your soul—in positive ways that strengthen your spirit. I’m learning that a... 
Apr 30, 2021
We’re celebrating Carly’s 23rd birthday in 2 weeks. When you have a child with disabilities, birthdays trigger an odd mix of thoughts, emotions, and memories. I find myself experiencing awe and wonder about what God has done in her life and ours for more than two... 
Mar 1, 2021
This is the fourth article in a series exploring what puts family caregivers in their “sweet spots” when supporting a family member with special needs. Today we’re looking at some challenges and opportunities for caregivers who think deeply. Do you have a... 
Feb 22, 2021
This is the third article in a series exploring what puts family caregivers in their “sweet spots” when supporting a family member with special needs. Today’s focus is on how caregivers experience refreshment through affirmation, appreciation, respect and... 
May 13, 2020
I’m not a trail mix fan. Never have been. I still only tolerate raisins and just started showing enthusiasm for dried fruit a couple of years ago. I prefer my snacks separated into their own bowls. But the last 22 years are a trail mix of emotions and memories for me....Jul 26, 2016
These comments from July 25, 2015 warrant reposting today.The Angelman Syndrome community worldwide has been reeling this week — experiencing a horrifying, heartbreaking loss. Never before has my passion been greater that caregivers need support, encouragement,... 
