Dec 3, 2020
Philippians 2:4Do not merely look out for your own personal interests, but also for the interests of others. “How are you really doing?” Oh, how I love to be asked that question, in that way! On a regular basis, I hear words of longing expressed by parents caring for... 
May 13, 2020
I’m not a trail mix fan. Never have been. I still only tolerate raisins and just started showing enthusiasm for dried fruit a couple of years ago. I prefer my snacks separated into their own bowls. But the last 22 years are a trail mix of emotions and memories for me.... 
Apr 21, 2020
I’ve been thinking a lot lately about how important open communication is for growing children, especially those who grow up as siblings of someone with disabilities, chronic health conditions or other special needs. The stress, chronic grief and complex logistics of...Jul 26, 2016
These comments from July 25, 2015 warrant reposting today.The Angelman Syndrome community worldwide has been reeling this week — experiencing a horrifying, heartbreaking loss. Never before has my passion been greater that caregivers need support, encouragement,... 
Nov 17, 2015
Thanksgiving, Christmas and a New Year are right around the corner. Days will be busy for most and lonely for some. Wherever we are on that spectrum, there is opportunity. I want to paint a picture of how we can give and receive life-lifting gifts this holiday... 
Nov 19, 2014
Mark and Nancy have experienced some extreme life adventures. For example, Mark is a talented water skier and snow adventurer. Nancy is passionate about horses and riding. Their son, Brandon shared his parents love for outdoor sports, animals and the mountains.... 
