22 Years of Trail Mix

I’m not a trail mix fan. Never have been. I still only tolerate raisins and just started showing enthusiasm for dried fruit a couple of years ago. I prefer my snacks separated into their own bowls. But the last 22 years are a trail mix of emotions and memories for me. And for all the ways and times my mind, body and spirit have been thrown into chaos since Carly was born on this day in 1998, I’m profoundly grateful for the rich texture and depth of flavor she brings to our collective lives.

Carly was diagnosed with Angelman Syndrome at two-and-a-half years old.

Carly is a woman who will test the limits of your wits and then move in to give the most generous and satisfying hug you’ve ever received. Her smile lights up a room. Her grin assures you there is much on her mind. Her laughter is infectious. Her high-decibel scream warrants ear protection. When she’s hurting, she’s a puzzle to help. When she’s aggravated, she’s strong as a horse. When she has energy to burn, she’ll use every inch of her small frame to knock you down and wrestle on the rug. When there’s food around, her arms seem many and long. Forever curious, even nosey at times, she’s been affectionately called a “seizer of opportunity!” She’s a sneaky rascal and fiercely stubborn. That curiosity and energy serve her well. A dance party with Carly finishes out any day perfectly. She pours music and praise from her soul. I have huge respect for her perseverance. She’s exploded my own faith and expectations on a number of occasions. For all the times we have to ask her to “just wait” while using a full body block to keep her from tearing into something or knocking something down, I don’t know anyone who would be so patient as she is.

We’re celebrating Carly’s 22nd birthday today. Larry and I were married at 22 so this number throws another few layers of nostalgia and emotion to all the feels. We had an epic dance party that night. We’re going to have another one tonight with all three of our incredible daughters and a bunch of other loved ones. They will join us virtually on something called Zoom. Yes, it’s an epic year, isn’t it?

When I shake the bowl of my feelings today, the ones that quickly rise to the surface are pride, gratitude, hope and joy.

Happy birthday, Carly! We’ll try to give you gifts you love. But, truly, YOU ARE THE GIFT.

1 Thessalonians 3:9
How we thank God for you!
Because of you we have great joy as we enter God’s presence. 



NOTE: Carly’s oldest sister is the one helping Carly make trail mix in the featured photo. Rest assured, that is a sweet moment I was happy to watch them have together. But I had no interest at all in eating the snack with them. Even without the raisins, I’m not interested, thanks. 🙂

Special Siblings Needs Safe Places to Process Life

I’ve been thinking a lot lately about how important open communication is for growing children, especially those who grow up as siblings of someone with disabilities, chronic health conditions or other special needs. The stress, chronic grief and complex logistics of their lives warrant heightened intentionality about keeping lines of communication wide open. Our kids need more than adequate opportunity to process their complicated lives with all the associated emotions, pressures, challenges and even the intense joys.

My husband, Larry, and I tried to provide this kind of safe zone for our kids when they were growing up at home. We also encouraged their relationships with mentors at church and with our adult friends. We deeply appreciated that grandparents, aunts and uncles served in this way too. And we sought out counselling for them when it seemed appropriate (at school and with Christian professionals). As they have come into adulthood, our children are now passionate about helping other special-needs siblings to communicate and connect in relationships that keep them thriving too.

“Our kids need more than adequate opportunity to process their complicated lives with all the associated emotions, pressures, challenges and even the intense joys.”

No matter how old our children are—very young, teenaged or adult—I think parents owe it to their children to be among their safest places to land. Don’t we all want our kids to be emotionally and spiritually healthy and confident? I expect they’ll be most socially satisfied when they can be transparent in relationships. And they’ll be most emotionally grounded when those relationships are based on biblical values. So, when they need to ask questions or just process their thoughts and feelings, I want to be the kind of parent who is available, compassionate and wise. I want to listen with genuine curiosity and very little judgement. Especially when our kids were young, I also wanted to recognize when it was necessary to initiate certain conversations knowing that my children wouldn’t always recognize when they needed to talk something out. As one of our daughters was growing up, Larry was particularly good (much better than me) at drawing out her deeper or unrecognized (but necessary) feelings.

To this day, Larry and I tend to be conversation starters who seek to know what’s going on in our children’s hearts and minds. I want to be a better listener though. I tend to ask questions well but interject my own perspectives too often. Time and time again, I keep learning from what my children have to say.

Over the years, I have had countless conversations with my children about what it is like for them growing up in a family with special needs. Sometimes these conversations were welcomed and sometimes they were met with an eyeroll. “There goes mom again,” they seemed to say. “I don’t feel like talking about this subject right now,” was the message I got loud and clear. I had to get creative and as casual as possible about how I slipped questions into our conversations in the car or around the dinner table, for example. Yes, these are often hard conversations that nobody really wants to have. And so, we tend to avoid or under value the benefits. Still, I try to respect their space and give them a pass when I sense the eyeroll while conveying a simple reminder that my door is always open if they want to talk. Really, don’t all kids need that, even if they aren’t part of a special needs family? They need our accessibility and our respect. Now that my own children are adults, they admit that it was good for me to urge their openness now and then.

“No matter how old our children are
—very young, teenaged or adult—
I think parents owe it to their children to be among their safest places to land.”

Here’s another thing I noticed as our children were growing up. They ebbed and flowed through different stages of need for information and understanding about our situation as a family with special needs. Just like when they were learning about sex, I responded to their questions with increasing details as they grew in maturity. Similarly, I watched their questions, feelings and perspectives about being part of a special needs family change through different seasons of life. Now that they are meeting more and more peers who are also special-needs siblings, they are discovering how valuable it has been for them to have safe places to ask questions, express frustrations and disappointments, share ideas and have their perspectives valued. They see that not all special-needs siblings have adequate opportunities for that kind of processing.

A couple of years ago when my daughters and I started speaking around the country about parenting special siblings, I created a list of “Conversation Starters for Parents.” And along with that, there was a “Guide for Parents’ Reflection.” Click here to download these resources.

It can be a challenge knowing how to check in with our kids often enough but not so frequently that we irritate them. I have to remind myself sometimes that I’m asking primarily for their benefit, not my own. I also have to be careful about how frequently or intensely I share about my own grief with them. To some extent, I need to model healthy grief processing and stress management. I want them to see that I understand and resonate with them. But I know they need to understand my experience without mine superseding theirs.

“MY KIDS NEED TO UNDERSTAND MY EXPERIENCE WITHOUT MINE SUPERSEDING THEIRS.”

I’m thankful that none of us is ever too old to begin processing questions, feelings and perspectives along with our children. I’m coming to see this as one of the most precious rewards of having adult children. By raising them in an atmosphere of safe communication, we now enjoy treasured friendships with each of them.


To read more about great communication with special-needs siblings, check out this article from Church4EveryChild.com.

Click here for my full series of articles about ministering to people who are siblings of someone with special needs.

There are some common questions siblings may be asking themselves or others through the different life seasons. 
Click here to download the “Sibling Season Questions” file.



This post by Lisa Jamieson first appeared June 2018 at LisaJamieson.org.

What is the Parable of Your Life?

par·a·ble
ˈperəb(ə)l/
noun

A simple story used to illustrate a moral or spiritual lesson, as told by Jesus in the Gospels.

If your life was a parable, what would the lesson(s) be?

That is a question I began pondering last summer. I was in the process of updating my website, finishing a new book and planning for the next season of life and ministry. I was thinking and praying a lot about how my talents, passions and time might best be used for the next few years.

I thought back over highlights (and low-lights) of my life and began considering how those experiences had shaped me, taught me things, stretched me for the better, sometimes kept me stuck yet often spurred me on. Events and circumstances that left a big impression on me were numerous but included things like moving a lot while growing up (including spending my later elementary and high school years in Canada), being bullied horribly in middle school, putting God “on a shelf” for a while in college, living the “American dream” for a while in our early years of career and marriage, running into a hard storm a few years into marriage, having a child with profound disabilities, helping two other children navigate life and dreams into adulthood and so much more.

From these memories, I realized some life lessons had risen to the surface and become themes that resonated through much of what I have been doing with my life in the last several years. Sometimes, those lessons were spilling over into my interactions with others and, by God’s grace, becoming resonating or teachable points for them too. It was deeply encouraging and humbling to recognize some ways God had mercifully orchestrated both good times and hard times for greater purposes than I could have imagined.

Isn’t that the truth? What can seem to be the simplest, even mundane, experiences in our lives can often be steeped in life lessons! As with the illustrations Jesus used for teaching, those lessons can turn our perspectives upside down and rearrange our ideas about what matters. Those “parables” have the power to point us in the direction of a new way of living — and even a new way of sharing life. That has certainly been true for me.

I believe these have become key “parables” from my life:

  • God uses adversity to move our hearts, lives and relationships to places we were quite unlikely to go if left in our comfortable places.
  • After a life crisis, things may never be the same. But maybe things were never meant to be the same.
  • Where there is human frailty, there is opportunity for grace to break through. And when grace appears, God’s nearness, accessibility, power and goodness are experienced in a whole new realm.
  • Answers aren’t always available to us but Jesus is always available. He is the perfect closure to our questions and ambiguous circumstances. (This is paraphrased from Tim Keller’s book Walking with God Through Pain & Suffering.)

Joni Eareckson Tada’s life is like a living parable, teaching the world about God’s sovereignty in suffering. Joni is the Founder and CEO of Joni and Friends International Disability Center, is an international advocate for people with disabilities. A diving accident in 1967 left Joni, then 17, a quadriplegic in a wheelchair, without the use of her hands. After two years of rehabilitation, she emerged with new skills and a fresh determination to help others in similar situations. Joni has written more than 50 books on topics ranging from disability outreach to understanding the goodness of God and the problem of suffering. Her life story and teachings illustrate this truth beautifully:

God permits what He hates to accomplish what He loves.
— JONI

This focus for reflection has been helpful for me. Will you think about it too? When we understood how our lives are like a parable (or series of parables), it can give us some clues about where to prioritize our time, how to invest in our careers and relationships, how we can help others, whether it’s time to shift gears and find a new way to live on purpose. Reflecting on life’s lessons also helps us to see God’s faithful hand in our circumstances and empowers us with the freedom to fully live!

If God is for us, who can ever be against us?
No one.
For Christ Jesus died for us and was raised to life for us,
and he is sitting in the place of honor at God’s right hand, pleading for us.
No, despite all these things, overwhelming victory is ours through Christ, who loved us.
Indeed, nothing in all creation will ever be able to separate us
from the love of God that is revealed in Christ Jesus our Lord.

—Romans 8:31, 34, 37, 39

So how about you? If your life is a parable, what lessons is it teaching? 

We would love to hear from you. Please drop us a note and let us know what parables you are seeing in your own life story.


This post was authored by Lisa Jamieson and first appeared in February 2018 at LisaJamieson.org.

A Picture of Easter

Our friend Joel Warne of Wellspring Life Resources is sharing an Easter reflection here today. Larry and I have been grateful beneficiaries of and ministry partners with Wellspring Life Resources for over twenty years. When I was a young wife and mom, Joel’s book Soul Craving was a most influential resource in helping me know Jesus more intimately and tangibly. Wellspring offers a range of spiritual renewal services for both leaders and lay people across the country including live events, small group resources and counseling. Their ministry calls our hungry hearts toward a more rich and transforming daily experience of God.  We’re very thankful Joel shared this poignant and true message of hope with our readers for Easter 2020.


The comedian George Carlin once quipped that he was so shocked by what he found the day he entered this world that he couldn’t speak for two years!

Ha! It is a shocking world, especially during these remarkable days when ominous forces seem active overtime to rock things precious to us.

Ancient faiths around the world right now are urging hope, optimism and courage to act toward a positive future as the most healing and authentic responses to the uncertainties we all face.

At this Easter time of year Christian churches view this hope through the lens of Jesus of Nazareth’s story. It embodies the cyclical human journey from happiness and plenty, through unexpected loss and despair, toward the possibility of new and surprising resurrections.

May I offer a picture of Easter?

Our granddaughter was born at home by way of a pool birth. Our daughter and son-in-law are modern parents so invited their other girls, ages six and eight, to be in on the experience. The 8-year old reflected and concluded, “No, I’ll listen at the door.” The six-year old, who wants to be a veterinarian when she grows up and loves all things biological declared, “I’m there!”

Everything went great. Downstairs we got word after the birth that both baby and mom were healthy and happy. We were still congratulating ourselves when an alarm came from the room—the baby’s breathing rate had suddenly soared dangerously high. After laying peacefully with our daughter in the warm birthing pool our new granddaughter had been given into the arms of an assistant while her mother transferred to a bed. Separated from mom, the baby’s breathing rate rocketed into hazardous territory.

An anxious half hour later came relieving news that the baby was ok. The midwife had done something wise and beautiful. To bring our new granddaughter’s breathing back to a safe level she placed her naked body skin-to-skin on her mom’s chest. Slowly, the baby’s breathing entered the rhythm of her loving mother. Lying there, in intimate caring contact with her mom, our granddaughter relaxed into a serene calm.

Let me offer you that picture—the image of the threatened, vulnerable child held skin-to-skin at the breast of the loving parent. The protective embrace, the child snuggling into its natural home, the restoring shared rhythm.

This is the invitation of Easter.

Lots of us are breathing fast these days. Heart rates are high too. There is a feeling of vulnerability as our ordinary supports and controls prove less and less certain. Easter is about leaning in, skin-to-skin, with a loving Parent. It’s a decision of the will—repeated again and again—to entrust things into a caring embrace.

What can we entrust?

  • Our fears and uncertainties: Fear is a failure of imagination. It chases itself in a closed loop, a hamster wheel circle. Easter-trust releases our fears and uncertainties into the reality of a bigger story and opens our world to an invasion of help and provision from the outside.
  • Our preferences and fantasies: An ancient wisdom wisely counsels, “Be with God in what is.” That is, make peace with your real life with all its pluses and minuses. Stop kicking against it. Relax trustingly into your real situation today. This makes space for Easter’s renewing force to surprise you with unanticipated solutions.
  • Our losses: physical and financial, plans and dreams, even precious lost loved ones. At the heart of Easter is the idea of Resurrection, the conviction that in each painful dying is buried a hidden kernel of life ready to unexpectedly grow up again, often in new forms more profound and fruitful than the original. It’s hard to release our painful losses, yet we are not releasing them into a dark abyss, but into loving and powerful Hands that return them to us in a new form—as personal healing and rich new possibilities.

Certain narratives have been given us to provide our hearts and minds a framework that resonates and works in a world like ours, in times like these.

The Easter story is a narrative supreme.

Easter is about leaning in, skin-to-skin, with a loving Parent. It’s a decision of the will—repeated again and again—to entrust things into a caring embrace.

If we can find courage to relax our losses, fears and preferences into a caring Hand more capable than ours we discover the Easter surprise—new life invades tombs! Into every painful death, collapse, calamity or puzzling defeat, God has preceded us with an Easter resurrection, poised and ready, full of relief, keen to be born.

Copyright 2020, Joel Warne, WellSpring Life Resources
Permission to forward, post or reprint is given by the author.
WellRefreshed.com


For more than 35 years Joel has led leader and lay retreats, workshops, and groups around the theme of ordinary people moving toward a more intimate daily experience of God. As a spiritual director and co-founder of WellSpring Life Resources, Joel has written and published spiritual formation curricula used across the country.

Joel is a graduate of Bethel Theological Seminary in St. Paul, MN. His special love for Christian ministry leaders is expressed through pastor and leader retreats that both comfort and challenge leaders in their call. His many years in the corporate world before co-founding WellSpring in 1999 with his wife, Gerri, a Temperament Therapist, give him lots of insight into the challenges and joys of ordinary people in their journey with God.

Remembering Well: Good Friday 2020

You can watch Lisa’s Real Talk livestream above. The article below highlights the spirit of her message on caring for each other by remembering well.


National leaders have been talking a lot about caring for each other these days.We’ve talked about things we can do to help protect each other during the coronavirus pandemic:

Wash hands
Cover your mouth
Keep physical distance
Stay home

Today I was listening to the news and hearing compassionate guidance for families grieving the death of loved ones during this time exceptional time of loss. My own aunt passed away last weekend. My heart aches for her siblings (including my dad), my uncle and cousins who couldn’t be present with each other through her last weeks and hours. Nor can they say remember her within the fellowship of loving community the way people typically grieve (at least for now). My cousin’s wife is a funeral director. Like so many working in funeral homes, she is wrestling to help families when there are so many new protocols and limitations on our rituals.

It got me thinking about what we’ll remember most about this pandemic thing.

I hope we remember this season in ways that are honorable.

honorable to people who lived through it or died during it

    helpful to those who come after it

         and pleasing to the God who walked through far worse for us.  

How do we do this? How do we honor those who are lost or the ones who are sacrificing so much in during this time?

I think we might best honor this season by how we remember it. And how we remember this time starts with what we do with it now.

What kind of memories are we creating during this shelter-in-place experience? I’ve been thinking about this. I’ve been praying that God would show me how to be attentive to Him in how I spend this opportunity. Yes, something is getting spent here in this surreal way of living. I’m not trying to lay a guilt trip. I’m hoping to cast a vision. Because I’ve caught a vision. I believe God starting planting it in Larry and me years before this isolation season was thrust on the rest of the world. Because, you see, special needs families like ours already know some things about the shelter-in-place lifestyle that the rest of the world is just starting to learn.

We raised our family trying to be intentional about creating good memories. Disability was so consuming of our life. And the risk was great that Carly’s needs would flavor our life in such a significant way. Larry and I didn’t want our challenges with Carly to be what our other children remembered most about growing up a Jamieson. We understood that the challenges would bring them some helpful lessons and memories too. We just didn’t want those challenges to have inappropriate or disproportional weight or influence. So, now and then we tried to dream up some remarkable things that would stand out in their memories alongside the blessings and challenges of being a special needs family. For example, our vacations opportunities were rare and challenging but we did what we could to make some happen. Sometimes that even meant planning an epic staycation. But we also tried to make special things out of everday stuff. The phrase “power fold” is packed with nostalgic meaning for our family. That story is for another day.

In a similar way, I think we have a need and opportunity to be intentional about creating memories of this time too. I’m been thinking: how can we honor and care for each other beyond the handwashing and social distancing — especially to honor those who will live on and those who gave everything for us?

We can work with great intention NOW to make sure that the lasting message of this season — the legacy of this time — is a helpful one. We can do this for the sake of those who gave so much, for the sake of our children and for the sake of future generations. We can work with intention to care well for each other — not just in protecting each other’s physical bodies from harm of the virus but also by caring for each other’s souls (our minds and spirits). We can remember God. We can share hope. We can lead in faith. As special needs parents, we can feed our own souls and find others who will lead us well so that we can, in turn, lead our families well.

I’m been thinking: how can we honor and care for each other beyond the handwashing and social distancing — especially to honor those who will live on and those who gave everything for us?

God has been telling us to “remember well” since the earliest days of mankind. He showed us how to throw feasts and gave specific instructions about what to celebrate at those feasts. God knows our need to focus our minds rightly. The Old Testament feasts helped our ancestors do that. Practicing things like communion and Christian holiday worship services help us remember and enjoy God’s presence and power among us. When people looked back on their memories with a focus on regret or longing for the former times, God warned them. He said there was a better way.

God knows our need to focus our minds rightly.

At Walk Right In Ministries, one of our favorite examples of God showing his people how to remember well happened at the Jordan River at the brink of the Promised Land. The story is told in Joshua, chapters 3 and 4. That experience inspired the name of this ministry. You can read about it here.

Now, because it is Good Friday, I got thinking about Jesus’ sacrifice and how we remember that. Do you see the “rabbit trail” I’m on here?

What does it look like for me to remember and honor Jesus’ sacrifice well?

  • Today especially, I want to acknowledge my depravity and self-centeredness
  • I’m trying to express deeper and more frequent gratitude for what He gave up for me
  • I want to own my faith story and live it well so that others will see that God is faithful

1 Peter 3:15
Instead, you must worship Christ as Lord of your life. And if someone asks about your hope as a believer, always be ready to explain it.

So what do you think the legacy of this pandemic will be? There are a lot of people speculating about that.

  • Today, I want to suggest that we NOT PASSIVELY WONDER.
  • I want to suggest that we start today BEING INTENTIONAL about creating memories.

We can work with intention to care well for each other — not just in protecting each other’s physical bodies from harm of the virus but also by caring for each other’s souls (our minds and spirits).

This doesn’t need to be a big or complicated master plan. I think the power lies in a combination of two things:

  • Being attentive to God’s prompting in simple moments during the day or week.
  • Thinking creatively about a few grand gestures.

Some of my most treasured simple moments so far have been learning how to sign the message of “Happy Easter” with Carly, baking cookies six times more often than usual, playing Family Farkle on Zoom with extended family, sharing goofy Marco Polo chats with our daughter across the country and having daily conversations with my husband about our fears, frustrations or hopes. When it comes to the grander gestures that will likely flavor the way we remember this time, a couple of things that come to my mind are two birthdays we celebrated during the pandemic, the tremendous sacrifice Carly’s caregivers made to help us through (and that are allowing me to share with you like this right now) and a special Easter egg hunt we created for a couple of neighbor kids.

What I want to help others remember most about this pandemic experience is three things:

  • This was a time when we learned to enjoy each other much more meaningfully.
  • This was a time when we learned to experience God more intimately.
  • This was a time when we learned to share God’s love with others in ways that were both profoundly satisfying for their souls and highly honoring to God.

Joshua 4:21-22, 24
Then Joshua said to the Israelites, “in the future, your children will ask, “What do these stones mean?” Then you can tell them…”He did this so that all the nations of the earth might know the power of the Lord, and that you might fear the Lord your God forever.”

Psalm 27:13-14
Yet I am confident that I will see the Lord’s goodness while I am here in the land of the living.
Wait patiently for the Lord. Be brave and courageous.
Yes, wait patiently for the Lord.

John 14: 12
“I (Jesus) tell you the truth, anyone who believes in me will do the same works I have done, and even greater works, because I am going to be with the Father.”


Would you like to connect in a private small group setting to dig deeper into God’s word and grow with others who are caring for a loved one with disabilities?

I’m so excited to invite you to join me and other special needs family members for a new weekly Zoom video conference called Real Talk Multiply! We love shared stories at Walk Right In Ministries — especially when they bring encouragement and/or Christ-pointing insight within community.

Here’s the link but you’ll need to write to us at info@walkrightin.org to officially register and get the Meeting Password.
“Real Talk Multiply” Virtual Gathering on Zoom: https://zoom.us/j/918676626

Real Talk Multiply also offers a private Facebook group for ongoing discussion outside of the video conference gatherings. We simply ask that you keep those conversations confidential, respectful and spam free.

The Real Talk Multiply community begins April 14th, 2020 and will continue every Tuesday from 2:00 pm until 3:00 pm (Central). Holiday and vacation exceptions will be announced in the private “Real Talk Multiply” Facebook group.

Join us whenever you can!


Lisa Jamieson is an international speaker, author, caregiver advocate and licensed pastoral counsellor. Her passion is spurring special needs families toward growing intimacy with Jesus and thriving relationships with each other. She is co-founder and executive director of Walk Right In Ministries and leads the Minnesota Disability Ministry Connection. Lisa is a member of the Sarasota Academy of Christian Counseling certified in Christian temperament therapy. Her books and Bible studies include Jesus, Let’s Talk which was inspired by her daughter, Carly, who has Angelman Syndrome. Lisa and her husband, Larry, have been married for 31 years and have three grown daughters.

Family Update from the Jamieson “Cocoon”

In a general sense, our family is doing quite well. We have been learning to cooperatively “cocoon” during the COVID-19 crisis. That means we’re trying to be attentive to our own personal needs, sensitive and respectful toward each other’s needs, protective and compassionate about of each person’s unique vulnerabilities and just generally trying to make the most of this unprecedented time. 

We’re trying to build bonds rather than allow the challenges to undermine them. This is not to suggest that we are always doing this well. But we are trying. For all the things competing for top of the priority lists, this idea of being an encouragement to one another has been at the top of ours. And it’s helpful to have a vision for some purpose in this surreal time. #CooperativeCocooning has been a helpful goal for the Jamiesons. (Read Lisa’s article on Cooperative Cocooning.)

We actually have more help right now with our daughter Carly than we’ve had since early August 2019. In addition to Carly’s usual full-time caregiver-friend (paid staff), one of the women who worked with her until college started last fall is wanting to work now that she’s back home studying online. We are tremendously grateful that our two respite providers are considered “essential” by our Governor and that they’re willing to strictly self-isolate for an indefinite period of time. Honestly, I would be out of my mind right now without them but mostly because Carly would be out of her mind without them. 

But there’s more to it than their just being essential for Carly’s wellbeing and my personal sanity. We view Carly’s respite staff as part of this family and ministry team. We are so grateful they feel the same way. These women work behind the scenes enabling me to do what I do every day. And they are fueled by the same passion we have to see the lives of special needs families worldwide enriched by a community sharing faith in Jesus Christ. God bless them!

For all the things competing for top of the priority lists, this idea of being an encouragement to one another has been at the top of ours.
#CooperativeCocooning

Carly is gradually adjusting to the new routines. She and I are actually on Day 24 because we were home alone for several days at the beginning of this while Larry was traveling for work and Carly’s staff support was on vacation. Those first two weeks were awful. Now that we’re learning a new groove, we’ve found it very helpful to arrange our quarantine days in ways that mirror the former routines as much as possible. For example, as the girls can no longer head to the gym shortly after lunch every day, I try to break from work and join them in the family room at 2 pm when a group of students and alumni from our daughters’ former high school do a workout on Zoom. 

Each day has it’s very difficult moments, particularly when trying to manage Carly’s outbursts of anxiety, restlessness and confusion. She is used to being on the GO! She does not like this boring lifestyle one single bit. It’s affecting her disposition (rather violent at times) and her sleep. 

Since Larry and I both work from home, this season has been “business as usual” in many respects. But some things have needed extra attention in the areas where we serve. My counseling ministry and special needs family outreach demands more creativity and time during this season. Larry is working extra hours on a team helping navigate the implications of the virus both logistically and financially. Short nights and stressful bedtime routines with Carly add strain. 

Our prayer requests may be very similar in nature to yours:

  • Continued health and protection for our family. Larry and Carly are both in the high-risk group for the virus. Our daughter Erin lives near the northern California hotspot and remains in lockdown with three roommates. Our daughter Alex lives alone in a Twin Cities area condo where she has been working virtually since early March. She is holding to strict isolation standards so she can be backup care for Carly and visit us every week or two.
  • Adequate socialization for Carly and her caregivers. Carly’s weekday support worker needs a fair amount of adult conversation and deep connection so working with non-verbal Carly alone all day and going home to an introverted roommate at night means we are working harder here to complement and cooperate with each other’s needs.
  • Anxiety management  (creativity). We are adapting new activities to meet needs within the limitations and keep Carly as content as possible.
  • Sleep. Enough said.

Friends, let’s pray with and for each other!

Lord, develop in each of us more patience, perseverance, trust, hope, kindness and gentleness. Comfort us in fears and grief that comes in waves during this pandemic season. Remind us that you are fully accessible and that we can intimately share our hearts with you in every single moment — the ugly moments and the precious ones. Would you multiply the precious moments, Lord Jesus? We need You to protect and provide. Yet in sickness and in health, You are faithful. May Your sovereign purposes prevail. We want to rest in that peace. 

Thank you that learning to slow down and focus on our relationships is a gift we can receive in the midst of this season. Teach us how to be attentive and compassionate about each other’s needs and cooperate with each other to meet those needs as adequately as possible in the circumstances. Help us to seek You first and things or people of the world second. Teach us to value Kingdom things above all else, putting our hopes, expectations and disappointments in Your perspective. Energize us by the power of Your Holy Spirit to think and reach outside of ourselves. Help each person in our quarantine “cocoons” to offer their lives as a spiritual sacrifice for one another without putting too much responsibility on any one person to meet the needs of another. 

O God, please make the precious lessons of this season grow deep and long roots in all of our lives! Above all else, teach us to love you and love each other well. 

Amen

This Pandemic Season Prayer shared by Walk Right In Ministries earlier last month has also been a source of encouragement and connection for many.

You all — our WRIM community of friends and partners — are constantly on my mind and prayers. Our Board and Prayer Team just received one of the longest updates ever in our history and we consider it great privilege to pray together for all of you!

How are you fairing with the stay-at-home orders? These are tricky days for most, extremely stressful for many and actually somewhat gratifying for others. I would love to hear how your family is doing and what is working for you as you try to adapt to these pandemic circumstances. Please drop me a note at lisa@walkrightin.org or ask to schedule a video conference.

You can also read more about Cooperative Cocooning here.


Lisa Jamieson is an international speaker, author, caregiver advocate and licensed pastoral counsellor. Her passion is spurring special needs families toward growing intimacy with Jesus and thriving relationships with each other. She is co-founder and executive director of Walk Right In Ministries and leads the Minnesota Disability Ministry Connection. Lisa is a member of the Sarasota Academy of Christian Counseling certified in Christian temperament therapy. Her books and Bible studies include Jesus, Let’s Talk which was inspired by her daughter, Carly, who has Angelman Syndrome. Lisa and her husband, Larry, have been married for 31 years and have three grown daughters.