There have been times when my daughter’s needs have become very scary or intense for me as her caregiver. I have felt like I’m survival mode. When she has suffered from seizures, I become fearful. When she hasn’t slept much for days or weeks, I have been overwhelmed and emotional in sleep deprivation. I have wanted to run away from my life. Sometimes I do, in a way. When there is support staff available in the morning, I have pushed the snooze so many times trying to push off a new day with its incessant battles. I tend to hide in my bedroom at any opportunity to escape the demands that will arise as soon as Carly sees me. I avoid the kitchen when I can’t face the need to puree one more meal. I run emotionally when I feel like I am suffocating in my life.
These are the confessions of a caregiver.
On today's blog, Lisa shares a poignant, personal peek into one of her prayer journals. On this particular day, she explored a reflection with God on 1 Kings 19.
Our prayer is that other caregivers may be inspired to find their own way to fresh soul connection and rest with our Savior.
Those of us who are parents of children with disabilities are particularly, dangerously, prone to the experience of destructive anger. It doesn’t just get directed at God. In fact, much more frequently, it can be directed at others.
Parenting kids (and adults) with developmental disabilities requires navigating along a pathway fraught with spiritual landmines. Rather than blow up our families and the relationships with others around us, however, we can learn to discern the depths of our own sin-prone hearts and to develop a heart of wisdom via the power of the Holy Spirit.
You'll find encouragement and practical steps to take on this week's blog. Our guest contributor i Stephanie O. Hubach, a Research Fellow in Disability Ministries in affiliation with Covenant Theological Seminary and the mother of an adult son who has Down syndrome.
Fathers have a uniquely tough, demanding, relentless, and nuanced role in parenting. When their child has extra needs, that role can be intimidating.
On this week's blog, we hope to encourage fathers and offer perspective about opportunities in four areas where many struggle.
In this week's blog, we're excited to introduce you to a new book called The Incredible Shrinking Toilets.
The book is opening doors for fun and meaningful conversations around the awkward topic of bathroom accessibility.
It's a delightfully creative collaboration between author Ryan Wolfe (founder of Ability Ministry) and illustrator Adam Bryant (an accomplished artist).
Check out this guest post from Ryan Wolfe and learn how easy it can be for YOU to be an agent of change and advocate for human dignity.
Statistics show that caregiving is sparking as much stress as joy in parents raising kids with special needs.
On today's blog, guest author Jolene Philo, shares practical steps for caregivers and parents of children with disabilities or other special needs.
Periodic family updates seem to be of interest to readers, and it has been a while since I reported family news. So, after I pivot briefly to reflect on Memorial Day, I’ll turn to some recent highlights of a more personal nature and our transition to summer.
We lost a friend this week. It was a tragic yard accident. Norm was a veteran who very recently turned 82 years old. I can hardly stop thinking about the heartache of his family and their lack of opportunity to say those “good-bye-for-nows.” While they can rejoice with absolute assurance He is with Jesus, their sorrow and loss weigh heavily.
As a mom to someone with disabilities, I’ve heard many people say, “God won’t give you more than you can handle.” I wonder how many times veterans’ loved ones are told that as they wait for a returning solder or grieve one that will never return.
It’s an unfair and unbiblical statement.
We're exploring it together on today's blog.
We welcome guest writers too! It is our joy to help share your stories and resources. Whether you are a published author, a writer looking for a platform in the disability movement or the family member of someone with extra needs, please don’t hesitate to contact us for Submission Guidelines.