An Uncomfortable Family Update

An Uncomfortable Family Update

Good heavens, this is not how I expected to title my first blog of 2022! Yet, alas, I’m online today for some “real talk” with friends who will “get it.” Our daughter Carly is 23 and has Angelman Syndrome. Her needs are complex and relentless. We have been extremely...
Open Communication: The Currency of Love in Caregiving Families

Open Communication: The Currency of Love in Caregiving Families

My family has learned that we communicate a lot nonverbally. Carly, my sister who has Angelman Syndrome, is (for the most part) nonverbal. So we’ve learned to read the people and situations around us without needing to say much. The problem with that is that we often...
I Considered a Life Reset and Got the Reboot I Never Expected

I Considered a Life Reset and Got the Reboot I Never Expected

In the late spring of 2020 when it started becoming clear that Covid quarantining wasn’t going to end soon, I started realizing a lifestyle reset was in order. It took several months and an untimely accident to shake me to my core and get my soul powered up for the...
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