by Lisa Jamieson | Jan 10, 2022 | Angelman Syndrome, Caregiving, Carly, Constant in Chaos, Faith Adventures, Fear, New Year, Prayer, Priorities, Special-Needs Parenting, Suffering, Trust, Uncategorized
Good heavens, this is not how I expected to title my first blog of 2022! Yet, alas, I’m online today for some “real talk” with friends who will “get it.” Our daughter Carly is 23 and has Angelman Syndrome. Her needs are complex and relentless. We have been extremely...
by Guest | Nov 1, 2021 | Angelman Syndrome, Caregiving, Community Stories, Glory Story, Grief, Perseverance, Prayer, Trust
The waiting room. We have all been there. Most of life is waiting for the next thing, the next season, the next phase. The waiting room is sterile, awkward, and a place of palpable fear. For those of us who are suffering, waiting is incredibly painful. We are waiting...
by Lisa Jamieson | Jun 14, 2021 | Angelman Syndrome, Caregiving, Perseverance, Special-Needs Parenting
Ephesians 3:16I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being. Caregivers who develop a sense of their purpose see several benefits. For example, when we understand the reasons why we are designed for and...
by Guest | Jun 1, 2021 | 12 Steps, Angelman Syndrome, Caregiving, Community Stories, Special-Needs Parenting, Suffering, Temptation
Our guest writer today is Ken Atkins, a man who grew up in the pleasant surroundings of a small North Texas dairy farm during the late 1950s. From there, he wandered through a career that included schoolteacher, newspaper writer and editor, advertising executive and...
by Erin Jamieson | Dec 18, 2020 | Angelman Syndrome, Caregiving, Christmas, Communication, Grief, Marriage, Parenting, Special-Needs Parenting, Special-Needs Siblings
My family has learned that we communicate a lot nonverbally. Carly, my sister who has Angelman Syndrome, is (for the most part) nonverbal. So we’ve learned to read the people and situations around us without needing to say much. The problem with that is that we often...
by Lisa Jamieson | Oct 22, 2020 | Angelman Syndrome, Caregiving, Constant in Chaos, Encouragement, Faith Adventures, Hope, New Year, Obedience, Perseverance, Prayer, Priorities, Worship
In the late spring of 2020 when it started becoming clear that Covid quarantining wasn’t going to end soon, I started realizing a lifestyle reset was in order. It took several months and an untimely accident to shake me to my core and get my soul powered up for the...
