Jun 5, 2023
Summer has barely started and many of us are already worried that the hinges are going to fall right off of life in the coming days. You might be fighting a sense of panic as routines are shifting or even non-existent. External transitions between seasons can create... 
Dec 12, 2022
It’s a most wonderful, busy, festive, overwhelming, exciting, disappointing, pressure-packed, beautiful, tense, fun, vulnerable time of the year! Yes, this is Christmastime. And for families already living with extra challenges, the holidays are ripe for a mess of... 
Mar 14, 2022
Was I the only one stunned to realize it is already Daily Savings Time? Clocks springing forward, weather changes, and seasonal paperwork updates (IEPs, guardianship renewals, medical record reviews, annual budget writing for government benefits, etc.) are things that... 
Jan 10, 2022
Good heavens, this is not how I expected to title my first blog of 2022! Yet, alas, I’m online today for some “real talk” with friends who will “get it.” Our daughter Carly is 23 and has Angelman Syndrome. Her needs are complex and relentless. We have been extremely... 
Oct 4, 2021
I don’t know about you, but we get weary over here at our house. We’re “Covid weary.” But truth be told, there are ongoing challenges that pre-date the pandemic. Things like quarantine, staffing shortages, and ongoing mysteries about how to ease our daughter’s health... 
Aug 23, 2021
This is Part 3 in our series and Respite Rhythms and another installment in the ongoing discussion about the 8 Habits of Caregivers with a Robust Support System. Today, I’m sharing some “pro tips” for you to consider. These ideas have been gathered from personal... 
