It’s a most wonderful, busy, festive, overwhelming, exciting, disappointing, pressure-packed, beautiful, tense, fun, vulnerable time of the year! Yes, this is Christmastime. And for families already living with extra challenges, the holidays are ripe for a mess of...
Why do we do the things we know we shouldn’t do? And why don’t we do more of the things we know we should do? We get impatient waiting for dreams to come true and get frustrated when our hopes aren’t satisfied. We have everything we truly need for this life because of...
I have long wrestled with why God gave me children with disabilities — as in plural. I’m the mother of 5 sons, three with special needs. Our special needs story began in 1999 when our third son was born with CHARGE Syndrome. I gave birth to our second child with...
I’ve been purging and re-organizing a large closet filled with things for Carly, our daughter with disabilities. The closet is actually pretty organized. But it is filled to the brim with history in the form of therapy equipment, medical records, school records,...
We’ve been celebrating dads this past weekend. And so we should. They have a uniquely tough, demanding, relentless, and nuanced role in parenting. And when they have a child with extra needs, they bear a role that can be intimidating, confusing, overwhelming, scary,...
Periodic family updates seem to be of interest to readers, and it has been a while since I reported family news. So, after I pivot briefly to reflect on Memorial Day, I’ll turn to some recent highlights of a more personal nature and our transition to summer. We lost a...
