Tell Us Your Ideas!

We’re in the very early stages of planning a virtual event (probably a fundraiser with a concert) to happen during late January or February 2021. Our first meeting to begin dreaming and planning is scheduled for next Monday night on Zoom —

Monday, August 17th at 7:30 pm.

Would you consider coming to this meeting to help us dream and plan?

Everyone is welcome to come learn more and share ideas. Of course, we’ll also be needing volunteers to help make the event happen. So, even if you don’t attend the meeting, please let us know if you’d like to be involved. And watch WRIM newsletters for updates. (Subscribe on our website.)

Please tell us your perspectives about how to make a virtual event fun and meaningful. Share your ideas here in the comments, email us or join the meeting for some fun fellowship too. If you want the Zoom link, message us at info@walkrightin.org.

Thank you for helping us make the most of ministry during “Covid times” and beyond!

Family Update from the Jamieson “Cocoon”

In a general sense, our family is doing quite well. We have been learning to cooperatively “cocoon” during the COVID-19 crisis. That means we’re trying to be attentive to our own personal needs, sensitive and respectful toward each other’s needs, protective and compassionate about of each person’s unique vulnerabilities and just generally trying to make the most of this unprecedented time. 

We’re trying to build bonds rather than allow the challenges to undermine them. This is not to suggest that we are always doing this well. But we are trying. For all the things competing for top of the priority lists, this idea of being an encouragement to one another has been at the top of ours. And it’s helpful to have a vision for some purpose in this surreal time. #CooperativeCocooning has been a helpful goal for the Jamiesons. (Read Lisa’s article on Cooperative Cocooning.)

We actually have more help right now with our daughter Carly than we’ve had since early August 2019. In addition to Carly’s usual full-time caregiver-friend (paid staff), one of the women who worked with her until college started last fall is wanting to work now that she’s back home studying online. We are tremendously grateful that our two respite providers are considered “essential” by our Governor and that they’re willing to strictly self-isolate for an indefinite period of time. Honestly, I would be out of my mind right now without them but mostly because Carly would be out of her mind without them. 

But there’s more to it than their just being essential for Carly’s wellbeing and my personal sanity. We view Carly’s respite staff as part of this family and ministry team. We are so grateful they feel the same way. These women work behind the scenes enabling me to do what I do every day. And they are fueled by the same passion we have to see the lives of special needs families worldwide enriched by a community sharing faith in Jesus Christ. God bless them!

For all the things competing for top of the priority lists, this idea of being an encouragement to one another has been at the top of ours.
#CooperativeCocooning

Carly is gradually adjusting to the new routines. She and I are actually on Day 24 because we were home alone for several days at the beginning of this while Larry was traveling for work and Carly’s staff support was on vacation. Those first two weeks were awful. Now that we’re learning a new groove, we’ve found it very helpful to arrange our quarantine days in ways that mirror the former routines as much as possible. For example, as the girls can no longer head to the gym shortly after lunch every day, I try to break from work and join them in the family room at 2 pm when a group of students and alumni from our daughters’ former high school do a workout on Zoom. 

Each day has it’s very difficult moments, particularly when trying to manage Carly’s outbursts of anxiety, restlessness and confusion. She is used to being on the GO! She does not like this boring lifestyle one single bit. It’s affecting her disposition (rather violent at times) and her sleep. 

Since Larry and I both work from home, this season has been “business as usual” in many respects. But some things have needed extra attention in the areas where we serve. My counseling ministry and special needs family outreach demands more creativity and time during this season. Larry is working extra hours on a team helping navigate the implications of the virus both logistically and financially. Short nights and stressful bedtime routines with Carly add strain. 

Our prayer requests may be very similar in nature to yours:

  • Continued health and protection for our family. Larry and Carly are both in the high-risk group for the virus. Our daughter Erin lives near the northern California hotspot and remains in lockdown with three roommates. Our daughter Alex lives alone in a Twin Cities area condo where she has been working virtually since early March. She is holding to strict isolation standards so she can be backup care for Carly and visit us every week or two.
  • Adequate socialization for Carly and her caregivers. Carly’s weekday support worker needs a fair amount of adult conversation and deep connection so working with non-verbal Carly alone all day and going home to an introverted roommate at night means we are working harder here to complement and cooperate with each other’s needs.
  • Anxiety management  (creativity). We are adapting new activities to meet needs within the limitations and keep Carly as content as possible.
  • Sleep. Enough said.

Friends, let’s pray with and for each other!

Lord, develop in each of us more patience, perseverance, trust, hope, kindness and gentleness. Comfort us in fears and grief that comes in waves during this pandemic season. Remind us that you are fully accessible and that we can intimately share our hearts with you in every single moment — the ugly moments and the precious ones. Would you multiply the precious moments, Lord Jesus? We need You to protect and provide. Yet in sickness and in health, You are faithful. May Your sovereign purposes prevail. We want to rest in that peace. 

Thank you that learning to slow down and focus on our relationships is a gift we can receive in the midst of this season. Teach us how to be attentive and compassionate about each other’s needs and cooperate with each other to meet those needs as adequately as possible in the circumstances. Help us to seek You first and things or people of the world second. Teach us to value Kingdom things above all else, putting our hopes, expectations and disappointments in Your perspective. Energize us by the power of Your Holy Spirit to think and reach outside of ourselves. Help each person in our quarantine “cocoons” to offer their lives as a spiritual sacrifice for one another without putting too much responsibility on any one person to meet the needs of another. 

O God, please make the precious lessons of this season grow deep and long roots in all of our lives! Above all else, teach us to love you and love each other well. 

Amen

This Pandemic Season Prayer shared by Walk Right In Ministries earlier last month has also been a source of encouragement and connection for many.

You all — our WRIM community of friends and partners — are constantly on my mind and prayers. Our Board and Prayer Team just received one of the longest updates ever in our history and we consider it great privilege to pray together for all of you!

How are you fairing with the stay-at-home orders? These are tricky days for most, extremely stressful for many and actually somewhat gratifying for others. I would love to hear how your family is doing and what is working for you as you try to adapt to these pandemic circumstances. Please drop me a note at lisa@walkrightin.org or ask to schedule a video conference.

You can also read more about Cooperative Cocooning here.


Lisa Jamieson is an international speaker, author, caregiver advocate and licensed pastoral counsellor. Her passion is spurring special needs families toward growing intimacy with Jesus and thriving relationships with each other. She is co-founder and executive director of Walk Right In Ministries and leads the Minnesota Disability Ministry Connection. Lisa is a member of the Sarasota Academy of Christian Counseling certified in Christian temperament therapy. Her books and Bible studies include Jesus, Let’s Talk which was inspired by her daughter, Carly, who has Angelman Syndrome. Lisa and her husband, Larry, have been married for 31 years and have three grown daughters.

Christmas Cookies & Caregiver Connectedness

I made two batches of Christmas cookies yesterday and found myself reminiscing over how the process makes me feel connected to loved ones of Christmases past. For example, I remembered the special way my grandma stored her cookies. She kept them in tins on the floor of her front coat closet. The cookies stayed cold there because she had a mail slot in the wall that let the winter chill leak inside. I shuddered to go in there but the reward was worth a hundred shivers! As I flipped through old cookbooks, I found a note from 1994 showing we made 75 dozen cookies that year. Four families gathered with our little ones for a whole afternoon and made nine different kinds. As the kids got older, we got even more productive but the pizza bill in the evenings also got quite a bit larger.

Sweet discovery in my cookbook. Our oldest daughter would have been almost 2 years old.

Baking, in general, makes me feel more connected to my roots. As I considered which traditional cookies to make this Christmas and imagined the similarities of my process to other women in my family, I found myself cherishing those relationships and generations.

I also thought of friends. One of my girlfriends made a traditional British cookie. It was only her third Christmas in the US at the time. Another friend used salt in place of sugar in a recipe one year and we still laugh about those first confused bites of recognition. Another friend made huge monster cookies when the rest of us were making dainty and fancy Christmas morsels. She grew up on a farm with six kids. I’m sure that situation played a significant part in forming her family’s tradition. It was fun to see our unique histories reflected in the variety when everything got plated up.

The way I feel connected to my fellow bakers during cookie baking is much like the connection I feel to other special needs moms at holiday time.

When my stressors are high because Carly’s routines are out of whack or when family games are interrupted by a diaper catastrophe, I’m tempted to feel sorry for myself. Holidays have a way of shining a spotlight on the many ways my life is vastly different — more complicated and more demanding — than it is for most of those around me. I long for more freedom to experience the ease and spontaneous joys of festive seasons. And those thoughts can make me feel emotional, depressed, frustrated, guilty and different or isolated from the rest of the world.

Reality is I am not alone. There is a world full of special needs parents who know a great deal about challenges just like mine. They are in their own homes, often feeling very alone amidst the merriment too. That’s why one of my favorite go-to verses during holidays and vacations is 1 Peter 5:8-11. I am comforted that others understand my challenges and I find great reassurance that God is a warrior advocate for me.

Cast all your anxieties on God, because he cares for you. The Devil is poised to pounce, and would like nothing better than to catch you napping. Keep your guard up and resist him. You’re not the only ones plunged into these hard times. It’s the same with Christians all over the world. So keep a firm grip on your faith in Jesus Christ. The suffering won’t last. It won’t be long before this generous God who has great plans for us in Christ—eternal and glorious plans they are! — will have you put together and on your feet for good. God has you on a firm foundation.

He holds dominion and He gets the last word. Yes, he does.

1 Peter 5:8-11 (paraphrased)

Friends, let’s praise God we are interconnected around the world and through the generations! I’ll be praying for you while I bake.

Life-Building Connections Amidst Challenges

Life challenges can take many forms — disability, chronic illness, caregiving for an aging parent or special needs child, strained or broken relationships, divorce, addiction, depression, unemployment, the loss of a loved one, and financial struggles. Issues can be complex and the journey may be long. Many experience confusion, anger, doubt, fear, or loneliness. Meanwhile, our society compels us to “muscle” through challenges but often leaves us feeling generally alone or overwhelmed.

Despite life’s painful seasons you can discover an adventure, right in the midst of adversity.

Thriving in challenges is possible with Christ-centered community and one-to-one friendships as well as personal study of the Bible and prayer. And while a strong and tenacious support system is critical, a personal relationship with Jesus Christ is essential. READ MORE about this essential foundation.

Walk Right In Ministries considers it one of life’s blessed privileges to come alongside struggling people who are wanting to grow and thrive on their journeys toward solutions, strength, contentment and joy. We want to help you identify resources and build connection strategies that fit your personal circumstances and unique temperament needs.

CONNECT THROUGH COMMUNITY 

Walk Right In Ministries helps people find and be part of fruitfully supportive communities. There are supportive communities for virtually any type of life challenge. Links to some wonderful opportunities are included throughout this article.

It is important to remain active in a Bible-believing church where you can be regularly involved with others who will “rejoice with you when you rejoice and mourn with you when you mourn” (see Romans 12:15). However, we understand that the Church does not always know how to effectively support families experiencing disability and other kinds of crisis. We are thankful for a growing number of organizations making it a priority to learn about how to help in this important and complex area of ministry.

We hope you are already experiencing fruitful and grace-filled connection in a church home. Unfortunately, many churches are still learning how to help families with special needs experience belonging. If this is the case for you or your family, we want to encourage you to be patiently persistent in helping educate your church about including people with diverse backgrounds and various abilities.

If, however, you are struggling in this area, and feel it may be time to look for a new church home, please pray and reach out for help. Our friends at Joni & Friends as well as Key Ministry are working hard and fruitfully to help people in situations like yours to find supportive churches. Walk Right In Ministries is ready to pray with you and do what we can to help you initiate a search process. We want to encourage you in developing a more effective spiritual community.

Support Groups are another way to get connected and grow. Biblically-based support group resources are available with a variety of themes so you can find one that fits your own particular need. If you are experiencing any of these concerns, consider some resources we can recommend:

Finding Glory Groups are a valued resource for those needing a guide to follow for their support group. Whether you know a church small group, book club or group of special needs moms, dads, couples, or siblings who want to explore life challenges together, utilizing the Finding Glory Group Discussion Guide is a bible-based curriculum that is flexible for these kinds of gatherings. The six-session format is easily self led and offers a variety of discussion questions so that groups can reconvene and repeat a cycle of sessions after the first round, if they desire to do so. If you are someone who wants to understand God’s answers to tough questions, know you have value in the Divine Plan, be encouraged on your journey and grow with others along the way, then a Finding Glory Group is for you! Learn more about Finding Glory Groups HERE.

CONNECT IN ONE-TO-ONE DISCIPLESHIP

Be encouraged to develop friendships where you can share joys and struggles safely, be inspired and challenged, and experience the power of prayer.

  • WALKING PARTNERS— We encourage you to cultivate one or two close relationships where Christ is central to your conversation. Walk shoulder-to-shoulder with one another listening, encouraging, exhorting and empowering. (If you are married, please be cautioned to develop only same-sex Walking Partner relationships.)
  • TEMPERAMENT COUNSELING— We encourage individuals and couples who are facing life-altering circumstances to find a professional Christian counselor who is certified in Temperament Counseling through the Sarasota Academy of Christian Counseling(SACC). Prayerful use of the temperament tool in the counseling process can help you get to the heart of your needs quickly so you make efficient and effective progress towards healing, encouragement, hope, personal growth, and answers.
  • FINANCIAL COACHING— If debt or financial challenges are part of your situation, please explore the resources at Crown Financial Ministries.

Particularly if you are facing a crisis situation or are feeling very alone, we encourage you to ask your pastor or a church leader for guidance in finding a support group, professional counselor or crisis help.

CONNECT THROUGH PERSONAL STUDY

At Walk Right In Ministries we believe that prayerful reading of the Bible is our best source of interaction with God — our supreme and final authority on faith and life. There is true hope within the pages of the Bible. We want you to be encouraged in daily reading and study of the Bible recognizing the opportunity that it is to grow in your personal relationship with God, develop God’s perspective of suffering and discover peace that surpasses understanding.

There are many organizations who are making it their mission to help connect and engage people with God’s Word. Here are just a few nationally-recognized options we value highly for study and online daily devotions:

Joni and Friends

Key Ministry

Desiring God

Bible Study Fellowship

Community Bible Studies

Precepts

CONNECT IN PRAYER

At Walk Right In Ministries, we passionately believe in the power of prayer. Everything we do at Walk Right In Ministries is covered by and trusted to prayer. We offer prayer workshops and take prayer requests from around the world.

Confess your sins to each other and pray for each other so that you may be healed. The earnest prayer of a righteous person has great power and produces wonderful results.
JAMES 5:16

Be assured that God hears you and delights in connecting with you in a deeply personal way. The Psalms are a ready example and source of inspiration when we don’t know what to say to God. (If you need help getting started, read Psalm 6, Psalm 42, and Psalm 73 for some wonderful prayers!) God understands our aching, longing and groaning, even when we don’t know what to pray.

 And the Holy Spirit helps us in our weakness. For example, we don’t know what God wants us to pray for. But the Holy Spirit prays for us with groanings that cannot be expressed in words.
ROMANS 8:26

We are very excited about one of our newest resources on prayer, a children’s book called Jesus, Let’s Talk that released in 2018! It offers a delightfully visual exploration of basic prayers to help children, early readers, and people with developmental differences enjoy the sweet basics of conversation with Jesus. The book also highlights key prayer words using American Sign Language. At Walk Right In Minisitries, we champion faith in Jesus that is initiated and fostered within the family.

We want you to feel assured that you, too, are covered in prayer. Let our Prayer Team come alongside you to pray for courage, hope and victory! Contact us at info@walkrightin.org.

Another prayer resource we like to recommend is the Autism Strategic Prayer Network (designed with autism in mind but very broadly applicable to other diagnoses). Explore Children of Destiny for more information.

  1. Hey! Would love to help on any way. Actually anytime you need it.

COMMUNITY: God Works through Intersections

Many of us walk through life trying to look “put together” while internally craving connection with others in deeper and more meaningful ways. We thrive in relationships based on things like love, integrity, transparency, commitment, respectful challenge and grace. Getting “real” with others isn’t easy but it’s important.

Incredible things can happen when our lives authentically intersect with others. Ideas are exchanged, support is given, love grows, a tangible expression of God is realized. In fact, the Bible says that a loving community gives us a picture of what God is like!

“No one has ever seen God; but if we love one another, God lives in us and his love is made complete in us.”
1 JOHN 4:12

Fifteen years ago, Walk Right In Ministries founders Larry and Lisa Jamieson were just beginning to appreciate the power of a Christ-centered community. They had seen individuals, couples and families come together into healthier, stronger and more satisfying experiences of life and God when they were connecting with others who shared their desire to grow in faith and relationships. Since they had been carried through a storm in their marriage by a small group of Bible Study friends, Larry and Lisa understood the value of prayer, encouragement and accountability on a deeply personal level. A couple of years later, their daughter Carly was born with severe disabilities and they were on the receiving end of a remarkable expression of practical help and prayer.

Unfortunately, they were also discovering that such Christ-centered, supportive communities were rare, particularly for families facing a crisis. It was troubling to meet more and more people struggling to maintain strong marriages, face adversity with hope, and experience friendships where Biblical support and prayer were central to the relationship. The Jamiesons are frequently heard saying, “the communities we’ve been part of have been remarkable but Jesus would NOT want our experience to be remarkable — He would want this to be common-place!”

At Walk Right In Ministries, we understand this two-fold challenge:

  • Christ-centered support communities are frequently unavailable or inadequate to meet people’s needs, particularly when those needs involve disability, chronic health issues or caregiving
  • Hurting people find it very difficult to reach out and ask for help in ways that empower others to respond

Walk Right In Ministries is working to build bridges among people as well as between those people and the Living God. We want to encourage you and connect you towards fellowship, churches and support communities that will help you grow in Christ and thrive in life.

“And let us consider how we may spur one another on toward love and good deeds, not giving up meeting together, as some are in the habit of doing, but encouraging one another — and all the more as you see the Day approaching.”
HEBREWS 10:24-25

To hear more of the Jamieson’s story about how God can use community, watch their interview on 100 Huntley Street and read Finding Glory in the Thorns.

Carly’s Thanksgiving Story

Carly Jamieson took her first steps when she was 3 1/2 years old. That came after years of stress and tears because her sensory issues were so severe that she couldn’t even tolerate being held in her parent’s arms for feedings until she was 9 months old.

At 2 1/2 years old, Carly started having seizures and was diagnosed with Angelman Syndrome, a rare genetic disorder involving a deleted portion of her 15th maternal chromosome. Despite the fact that Carly faced a grim prognosis and had been experiencing significant developmental delays, a sleep disorder, feeding problems, and seizures, a miracle story of community and a child’s potential was unfolding.

For over three years, sixty volunteers surrounded Carly’s family with help and prayer. That support set a foundation for amazing progress that continues bearing fruit in many ways yet today.

The heartwarming story of God’s love through that community during those early years of Carly’s life is told in the book Finding Glory in the Thorns.

That story was also the inspiration behind Christ-centered support groups that utilize the Finding Glory Group Discussion Guide.

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Click HERE to find the complete Finding Glory collection of books at Amazon.

Today, Carly’s tolerance for touching things shows itself in the contagious affection, frequent hugs and exuberant smiles that are much more typical of someone withBut  Angelman Syndrome. She’s a little “rascal” with a great sense of humor. She loves music, dance parties, sitting beside her sisters at the piano, jumping, swimming, and helper her caregivers make pumpkin waffles. The quality of her gait is remarkable considering her prognosis and she sporadically uses a small handful of word approximations. She has twice walked over a mile in the Angelman Syndrome Foundation annual fundraiser walk with her mom, dad, two sisters, and many friends.

That baby who would not be held now snuggles with precious bear hugs and even sometimes says, “I love you.”

Carly is a gift!

We invite you to watch Carly’s Thanksgiving Story — an adventure tale that God is still unfolding.

What is Angelman Syndrome? 

Angelman Syndrome (AS) is the result of an abnormality of the 15th maternal chromosome. Individuals with AS have global developmental delay and cognitive disabilities. They rarely develop any speech but everyone benefits from learning to listen in new ways to what they have to say. 

People with Angelman Syndrome usually have unique behaviors and generally happy personalities. Most individuals with AS will experience seizures. Many also experience sleep and feeding challenges. The majority learn to walk but usually have balance and movement disorders. A normal lifespan can be expected.

Angelman Syndrome is very frequently mis-diagnosed as autism or cerebral palsy. 

With strong supports, people with AS can thrive surrounded by friends and loved ones engaging in meaningful activities and sharing their unique perspectives. 

ln a medical breakthrough, Dr. Edwin Weeber cured Angelman Syndrome in a laboratory mouse. Because AS affects one single gene it is much easier to understand than other neurological disorders like autism and Alzheimers’ disease. Funding for research has more potential than ever as researchers grow closer to making a treatment available for humans. 

Visit the Angelman Syndrome Foundation and the Foundation for Angelman Syndrome Therapeutics for more information.